Gambaran Kualitas Hidup Anak dengan Epilepsi di Medan dengan Qolce-55

Abstract

Background. Epilepsy is a disease that disrupts the brain, characterised by recurrent seizures that occur twice or more without provocation for more than 24 hours. Based on data obtained from the World Health Organization, there are approximately 50 million people with epilepsy in the world. Meanwhile, in Indonesia, there is no valid data on epilepsy patients. Epilepsy and its causes are reported to have an influence on quality of life which includes several aspects, namely cognitive, social, physical, and emotional. QOLCE-55 is one of the questionnaires that can be used to measure quality of life, especially for children with epilepsy. QOLCE-55 consists of 55 questions covering five domains, cognitive function, physical function, behavioural function, and emotional function.Objective. To determine the quality of life of children with epilepsy in Medan.Aim. To know how quality of life of pediatric epilepsy in MedanMethods. Data for this study were collected using the QOLCE-55 questionnaire given to parents/carers of children with epilepsy. Then the data will be analysed using univariate analysis with descriptive analysis to see the data description.Results. In this study, 57 respondents were obtained. The results of this study showed that 68.4% of children had a good quality of life. Based on function, cognitive, emotional and social functions showed that more children had good function. While physical functions, more children with impaired physical functions than good ones.Conclusion. The results of the QOLCE-55 assessment in paediatric patients with epilepsy in Medan showed that more children had a good quality of life than those who impaired.